I'm Autumn the founder of Whole Story Meals. I have four boys ages 13, 11, and twins 9. My only daughter, Story Grace, is five and tube-fed. After four boys this sweet girl created a big stir, but I started to have concerns after her 20 week ultrasound. She was measuring small and not even my twins measured small. I was reassured that everything was fine and there was nothing to worry about, but I couldn’t shake the feeling that something was off. They sent me for a high level ultrasound and that’s when it was confirmed something was definitely amiss and it was so much worse than I could have ever imagined.
It’s been quite the journey, learning my daughter would be born severely disabled and being told she would only live a year or two. Holding my tiny little girl in my arms I knew I was going to do whatever it took to give her the best life.
One thing I have learned: When Story Grace is happy, mama is happy. Having your child crying from stomach pain is heartbreaking. Watching your loved one puke every time you feed them is unacceptable. I learned quickly that if I wanted my daughter to be well, I was going to have to cut our own path and make nutritional changes.
Currently commercial formulas used for tube-fed people are over 50% sugar! Would your doctor approve of a “typical” healthy person eating a diet of 50% sugar? NO! So then why would we feed our most fragile members of society one of the worst diets in the US? I have spoken to families who have a tubie on commercial formula and is puking 10 times a day, but when they switch to real food the puking instantly stops.
This is why I started Whole Story Meals. I wanted to provide a healthy, convenient option for tubies and that’s what Whole Story Meals is. Real food in a shelf stable, lightweight powder form. No more carrying coolers of heavy, messy, liquid blends everywhere you go.
Our tubies deserve real food! Let’s start demanding change.
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